Upping the Dose
I’ve been on the evening 4 pill dose for 4 nights now. My joint pain is definitely worse again. Specifically, my wrists, today. And my right pinkie finger (!). I’m starting 4 in the morning on Sunday. My skin has definitely gone through some changes – I don’t have a rash, but my skin looks bumpy – kind of like little goosebumps but there all the time. I don’t really care about them on my arms, but it’s annoying on my face. Makes me feel a bit freakish.
My skin is still peeling from that nasty sunburn, which is crazy to me. I have an appointment with dermatologist next week for my regular 6 month visit. So far, nothing new has caught my eye, so that’s good news.
I went out today and forgot my Coolibar jacket. I hated the feeling of fear and vulnerability. I had fresh sunscreen on, but still, I worry in the car and going from car to buildings while running errands. I actually bought another (non-UV) jacket to keep in the car. I’ve embraced the sun my entire life; hiding from it is foreign and sad to me.
Hi Dawn,
This is my 4th summer of hiding from the sun. I grew up loving the outdoors and loving the golden brown tan. It’s frustrating to see others enjoying the summer sun with no regard for the seriousness of melanoma. If only they had the perspective you and I have.
I finished a clinical trial that involved IL-2 and another protein in July. Scans in Oct. I am not B-RAF positive so unsure what my plan C is as this was my 3rd occurrence in my right calf.
I hate being a member of this club. I wish you much success with Zelboraf and I pray your side effects diminish!!