Hmmm….

My symptoms seem to have improved over the past 12-18 hours. I’m feeling less joint pain and my crazy swollen soles are less swollen today. I have wrist pain and thumb pain, and of course I’m still sore in some of my joints, but it’s definitely better.

My skin is starting to look a little different though. Not a rash, but not smooth. Kind of like when you get goosebumps – not super big goosebumps, just the little ones. It’s odd, but not bothersome.

I’m pleased that my body seems to be accepting the Zelboraf. At the same time, I hope the relaxing of the symptoms means that, not that it’s not working as well.

 

Oof

I’ve been handling my side effects of the Z fairly well.  Though I look like I’m struggling and it’s hard to get going, I’m not too bad. It’s been mostly joint pain – every day is a new adventure, as it travels a bit. But I know that it could be a lot worse.

Today’s pain inventory: Right thumb, first finger, right ankle swollen, left knee, left shoulder, left wrist, left pinky and thumb.

Newest issue? The bottoms of my feet.

As in they are swollen and hard and hurt like mad to stand or walk on. As in walking is next to impossible with bare feet, so I’ve taken to wearing slippers [side note: I need new, cozier slippers]. As in the slippers don’t really make it much better.

Last night really sucked pain wise for sleeping. I ended up in the chair instead of the bed and finally got some sleep. I know these side effects could be worse, so I hate to complain too much, but holy crap!

As most people in the midst of treatment say: As long as it’s working, it’s worth it.

A friend of mine drew this for me…makes me smile!

Drawn by Bil Simser for ME

Melanoma Walk

My mom and other assorted family members and friends are participating in the Aim for a Cure Melanoma Walk in Milford, MI this year in October.

If you’re feeling generous and would like to donate, here are some pages where you can do so! It doesn’t look like there is an option to do a team page, so my walkers are doing their own fundraising of varying amounts, so please give however you can!

 My Mom’s Page (for my mom, my brother and my boys)

Sunshine’s Page (my BFF)

Kimberly’s Page (my BFF)

Jennifer’s Page (my SIL)

I’m so proud of them, and so honored.

Just waiting

…for the side effects to kick in.

Yes, I know I should be thinking positively and hoping that I’ll have little or no side effects, but let’s be serious. Given the side effects I had with IL-2, and all of med allergies, and my history, I know I’ll get something. 

Day four of  big Z and I’m still feeling pretty good, but every twinge, every itch, every ache and I’m afraid it’s a side effect rearing its ugly head.

It’s dumb. I’m trying to be aware but not a hypochondriac.

I have a new hooded lightweight jacket that I put on when I leave the house and go to the car. I have to wear it in the car, too, since the sun comes in through the windows.

Every time I have an itch, I’m afraid it is the rash

Every time the sun feels warm on my skin, even though I have sunscreen on x2, I’m afraid it’s the burn.

Every time my stomach tightens, I’m afraid it’s the nausea.

A yawn? Must be the fatigue. 

A soreness in my mouth? Yikes! Is it the mouth sores?!

Or it could be regular old me.

I start 3 pills, 2x a day on Monday. Fingers crossed they stay easy to swallow and the side effects stay away.